This Saturday (5th September 2015), nine of Periscopix’s finest will be setting out on a 130 mile bike ride to raise funds and awareness for Smile with Shiv.
Smile with Shiv is a charity which was established by one of our colleague’s relatives after discovering their three year old son, Shiv, had Duchenne Muscular Dystrophy. The Smile with Shiv organisation has simple goals; raising awareness of Duchenne Muscular Dystrophy and generating funds to help Shiv and thousands of other children fight the condition. There is currently no cure for Duchenne Muscular Dystrophy, which makes this cause all the more important to us.
What is Duchenne Muscular Dystrophy?
Duchenne Muscular Dystrophy (DMD) is a very serious condition that causes progressive muscle weakness within children, due to the body not producing a protein called dystrophin. DMD currently affects one in 3,500 children – mainly boys and in rare cases, girls. By the ages of 10 to 12, most children are unable to walk and by their early 20’s, have developed fatal respiratory and cardiac complications.
How We’re Trying to Help
Vim, Shiv’s cousin, and eight of our team have organised a 130 mile bike ride to Brighton and back – the aim being to raise as much money as possible for the Smile with Shiv organisation. All donations raised will contribute towards the ground-breaking research into finding a cure for DMD.
Several members of the Sigma Sport team will be joining our cyclists on the charity bike ride. The team over at Sigma Sport have been incredibly generous with their support - planning the route, providing custom team jerseys and contribution towards funds raises.
Periscopix’s Cycling Team
(Left to right) Vimal Badiani, Richard Eccles, Will Collier, Dan Stock, Ben Gott, James Carswell, Chris Berger, Rob Simpkins and Will Midgley
How Can I Help?
We’re trying to raise £8,000 for the Smile with Shiv organisation. So far we’ve achieved 56% of our target, but we need your help to get us to the £8k mark. Whether it’s a penny or a pound, every contribution helps. To make your donation, please visit Vim’s JustGiving page.
A Note from Periscopix’s Co-Founder, Simon Norris
Our 130 mile bike ride to Brighton and back is in aid of a great cause, supporting research into Duchenne Muscular Dystrophy. To complete a ride of this length would be a major achievement. Difficulty increases exponentially with distance once you get over 100 miles or so. It’s not a gentle jaunt to the seaside.
As a parent, it’s hard to imagine what it must be like to have a child diagnosed with a degenerative disease like Duchenne. Vim’s nephew Shiv was born an apparently healthy baby and was a few months old before his parents started to suspect that there may be something wrong with him.
I didn’t know anything about this condition until a couple of years ago when we had an enquiry from someone called Alex Smith. Alex’s son Harrison was diagnosed with Duchenne in January 2011 which subsequently led to him leaving his London advertising job to set up Harrisons Fund, a charity which raises funds for medical research. If you want a taste, take a look at Alex’s blog.”
Here’s a paragraph from the latest article:
“He’s 8½ now, and Duchenne is beginning to give him a fair bit of a kicking. The speed at which he is going downhill is frankly terrifying. His feet are marred by early onset Cavus Foot which is making walking more difficult and his general strength and endurance has really dropped. I carry him up and down the stairs most of the time as I can’t bear to see him struggle, pick him up off the floor and help him into the car. We’re off to Great Ormond Street Hospital for his six monthly assessment next week and I am scared to death.”